Friday, 5 September
- Stephanie has been very happy and full of energy today. Behaving as a normal
healthy 4 year old getting ready for her birthday would.
Monday, 8 September
- Today was Stephanie's birthday. She is 5 years old. We had a small party,
only inviting here friend Angela from across the street.
Tuesday, 9 September
- Went in to KRCC today for Bone Marrow biopsy. The results will determine whether
or not the Induction Phase of Stephanie's chemotherapy have been successful in killing off
all of cancerous white blood cells in her blood and bone marrow. Stephanie was
pretty good about the whole thing, despite the screaming from the fear and pain. Mom
did OK too this time (the first time, despite being a nurse herself, she had to brought
back in a wheelchair because she was feeling faint).
- Stephanie's blood counts were very good this time - although still very low, she can
more safely be around other people.
- Although Stephanie is only due back to KGH on Thursday to be admitted for the next phase
of chemo, Mom and Stephanie decided to stay at Almost Home for this evening and Wednesday.
That way, we won't have to leave from Trenton at 6:30 Thursday morning to make it
to Kingston for 8:00. As well, it'll give them a nice "mother and
Wednesday, 10 September
- Linda called from Kingston this evening. They had a great "normal" day.
Thursday, 11 September
- Linda called me at work this morning. The doctor had been by and confirmed that
the results of Tuesday's bone marrow biopsy indicate that the leukemia is in remission.
This means that we can go into the next phase: Central Nervous System (CNS)
Prop.... The first dose will start right away and is essentially a number of drugs,
including metra.... to be given by IV over the next few days. Stephanie will be in
hospital till at least Saturday, but more likely till Sunday.
- Linda called me at home this evening. Everything is going OK. They have
three IV lines hooked up to Stephanie to pump in all of the fluids.
Friday, 12 September
- Linda called from Kingston this evening. Everything is going OK.
Saturday, 13 September
- Left with Michael this afternoon for Kingston. We going to stay at Almost Home so
we can spend the the rest of the day in Kingston and hopefully return to Trenton tomorrow
- Stephanie's body has changed since I last her last Tuesday. The latest drugs have
really made her face even more puffy. Even her temples are puffed up. It
doesn't bother her and she is still feeling fine otherwise. As a matter of fact
she's literally running down the hallways while pushing her IV pole.
- She's going to let me stay with her for the night in her room. Linda and Michael
will stay at Almost Home. We spend the evening reading books, watching movies and
playing games and running to the bathroom - the IVs are pushing a lot of fluid through her
and she needs to pee every 30 minutes or so.
- Her temperature seems to be slowly creeping up - its just above 38 celcius. As
well, her urine is showing a little bit of blood. The doctor ordered a urine sample
to check if there's an infection - results will only be back in 24 to 48 hours.
Sunday, 14 September
- Between the nurses coming in to take vitals, check IVs, draw blood, and Stephanie
needing to get up to pee, I didn't get too much sleep. The good news is that her
temperature has come back down to normal on its own - a good sign.
- By mid-afternoon, the blood results show that her body has adequately processed the
Methotrexale from Thursday - we can go home till Tuesday. Her blood counts are still
quite high so she is not that succeptible to infection.
- At home, Stephanie is feeling fine - well enough to go play in the park twice.
Monday, 15 September
Tuesday, 16 September
- Up at 6:30 AM, and by 7:30 AM we're off to Kingston for chemo via spinal tap.
Everything seemed to have gone well and by 2:30 PM we were ready to head back home to
- But, before we even got outside of Kingston city limits, Stephanie had thrown up several
times. We stopped and called back to the clinic to see if we should be worried but
they could only tell us that today's chemo shouldn't be the cause.
- Made it home to Trenton but by 5:30 PM Stephanie is still throwing up. After a few
phone calls back to the doctors in Kingston, we decide to bring her in to emergency at
Kingston. Wouldn't you know it, as soon as we get her back in the car she stops
throwing up! By 9:00 PM we're finally out of emergency (of course by now Stephanie
is feeling just fine despite having done nothing to her), and decide to call it a day and
stay overnight at Almost Home.
Wednesday, 17 September
- Pretty uneventful so far today, its lunchtime and we're back in Trenton. Her next
scheduled chemo is Tuesday, 30 Sep. Hopefully it'll be a good break for all of us.
Saturday, 27 September
- Stephanie is still doing very well. No fever and LOTS of energy!
Monday, 29 September
- Stephanie is busy getting all of her stuff ready for tomorrow. She's been
explaining to me how she will be going to the clinic (KRCC) first, and then will make her
way to the floor for her high dose methotraxate over the next few days. As she is
always thinking ahead, she explained to be me how she will ask the nurses to leave her IV
inserted into her port-a-cath so they will only have to poke her once - pretty smart for a
five year old!
Tuesday, 30 September
- Up at 6:30 AM and off to Kingston at 7:30 AM. Left Michael at Margarite's.
She'll make sure he gets on the school bus at 8:30.
- Stephanie was sick in the car again. Make it to the clinic by 9:00 AM.
Stephanie leads the way. When it comes time to insert the IV needle into her
port-a-cath, she doesn't cry at all - first time. She explains to the nurse that
she thinks it would be a good idea to leave the IV cause she'll be heading up to the floor
- Finally made it to the floor (ie, her hostital bed) by 2:30 PM. I have to leave
for Trenton so I can be back by 4:00 PM to meet Michael coming back from school.
Linda will be staying with Stephanie for the next few days.