Daily Diary
March 1999

Tuesday, 2 March (Day 54)

  • Stephanie is still feeling great.

Wednesday, 3 March (Day 55: WBC-8.8, HGB-136, Plt-142)

  • It was back into Kingston today for Pentamidine.  The weather was horrible today but we managed to miss the worse of it.  We got into Kingston just before it started snowing heavily.   Then, by the time it was time to leave, the heavy snow had turned to rain.
  • At the hospital, it was another big fight to get blood from Stephanie.  Now, without either the port-a-cath or Hickman, they have to poke her.  Unfortunately, despite trying on both hands, nothing would come out.  Finally, they were able to get something from her inner elbow ... boy, Stephanie is really holding on to her new blood!
  • They reduced Stephanie's Prednisone again.  Stephanie has gained so much weight lately that she weighs as much as Michael now (67 lbs).

Wednesday, 10 March (Day 62: WBC-8.6, HGB-141, Plt-154)

  • Pretty easy in and out of Kingston today.  They had no problems poking her to get blood today.

Wednesday, 17 March (Day 69: WBC-7.1, HGB-132, Plt-157)

  • Pretty long day for Stephanie today in Kingston.  They had a real hard time getting blood and getting her IV started (Pentamidine).  She ended up falling asleep for an hour afterwards from crying so much.  Otherwise, everything is still looking very good.  In anticipation of reducing medications and monitoring, we worked out that we only need to go into Kingston every two weeks now (as opposed to every week).  It'll make it easier on Stephanie so her veins will have a better chance to heal in between pokes.
  • They have slowly been reducing Stephanie's oral medications.  She's down to 3 Cyclosporin pills twice a day, two Acyclovir pills 4 times a day, 1 Penicillan pill twice a day, and 3 Prednisone pills once a day (1 in the morning and 2 in the evening).
  • Day 69 - Sitting.jpg (41836 bytes) Day 69 - Laying.jpg (45582 bytes) Day 69 - Pills.jpg (20424 bytes)

Thursday, 18 March (Day 70)

  • Linda and Michael took the bus to Ottawa this morning.  They'll spend the next few days at her parent's place.  Although Stephanie would have really liked to go, she understands that at this point, its safer that she stays in "isolation" at home.   It'll do Linda good too, this will be the first time that she gets a real break from Stephanie since last winter.
  • Stephanie has warned us.  She says that she's keeping a list of all of the special places that we have brought Michael to (every now and then, we have been trying to do special things with Michael) so that when she's better, we'll have to bring her too!

Sunday, 21 March (Day 73)

  • Linda and Michael made it back from Ottawa today.  Stephanie and myself survived the week OK.

Monday, 22 March (Day 74)

  • Stephanie is still feeling great.  The nice weather has made her want to go outside a lot.  Its doing her a lot of good.
  • Day 74 - Buttermilk1.jpg (10686 bytes) Day 74 - Buttermilk2.jpg (10676 bytes) Day 74 - Buttermilk3.jpg (11148 bytes)

Friday, 26 March (Day 78)

  • This whole week, Stephanie has continued to feel really well.  She has spent most of the week outside.  Today, she was even tap dancing!
  • Day 78 - Warmup.jpg (9828 bytes) Day 78 - Dancing Feet.jpg (9840 bytes) Day 78 - Dancing Girl.jpg (13975 bytes)

Wednesday, 31 March (Day 83: WBC-6.5, HGB-120, Plt-189)

  • It was into Kingston again today for Pentamidine.  No problems with starting the IV.  However, Stephanie was sick to her stomach and ended up throwing up.  No other symptoms so we're assuming just the same old "anticipation" again.

Day 0 was the day of the bone marrow transplant, Day 1 is the day after, etc.
WBC is the White Blood Cell Count (fights diseases).  Below 1.5 means that her immune system is very weak or non-existant.   (Normal= 4.5-13.5)
HGB is HemoGloBin or red blood cell count (carries nutrients).  Below 70 means a blood transfusion.  (Normal= 120-160)
Plt is the number of Platelets (stops bleeding). Below 20 means a platelet transfusion.  (Normal= 150-450)