Daily Diary
May 1999

Tuesday, 4 May (Day 117)

  • Stephanie seems to be doing quite a lot better this week than the last few weeks.  Her appetite is finally slowly coming back and the rash on her face seems to be responding to the cream.  As well, she is sleeping much better now and she seems to be getting over her sniffles and cough.  Since her face has cleared up, we won't bother going to Kingston this week and will only go next week for routine blood/exam.

Thursday, 13 May (Day 126: WBC-3.1, HGB-119, Plt-218, Poly-1.5 )

  • Stephanie's appointment in Kingston this morning went fine.  All they did was draw blood.  Her counts have been slowly coming down over the last few weeks (which is bad but expected) but they reassure us that it is normal and should slowly turn itsself around.  It has to do with coming off steroids.  Overall, they are very impressed with Stephanie's progress to date.
  • Stephanie has been feeling very well over the last week or so.  She is actually eating some breakfast these days.  Over the last two months she has lost about 4 Kg (from 31 Kg in March to 27 Kg today).  It also has to do with coming off steroids.   Over the last two weeks, though, her body is slowly starting to turn itself around and she is starting to eat more regularly.
  • Stephanie's rash on her face seems under control and the doctor suggested we stop using the cream she had prescribed.  Just the same, she seems to be hypersensitive to the sun these days.  Her face gets red really quickly and breaks out into hives.  It has to do with the Septra she is on, I think.  The doctor had warned us so we'll have to be pretty careful.  Its going to be hard because Stephanie is REALLY enjoying the nice weather these days.

Monday, 17 May (Day 130)

  • Day 130 - Mix97 Bear.JPG (56052 bytes)

Tuesday, 25 May (Day 138: WBC-4.9, HGB-129, Plt-202, Poly-2.65)

  • Overall, Stephanie has been still looking and feeling extremely well.
  • Her appointment in Kingston this morning went fine.  Again, all they did was draw blood.  Her counts appear to have bottomed out (that's good) and seem to be started on the upwards trend now.  Her weight is down a little bit from last appointment (26.4 Kg) but she's been eating fairly well overall so it shouldn't become a problem.

Day 0 was the day of the bone marrow transplant, Day 1 is the day after, etc.
WBC is the White Blood Cell Count (fights diseases).  Below 1.5 means that her immune system is very weak or non-existant.   (Normal= 4.5-13.5)
HGB is HemoGloBin or red blood cell count (carries nutrients).  Below 70 means a blood transfusion.  (Normal= 120-160)
Plt is the number of Platelets (stops bleeding). Below 20 means a platelet transfusion.  (Normal= 150-450)