Daily Diary
October 1999

Friday, 1 October (8 Mths)

  • Stephanie seemed to have gotten over her sneezing and sniffling, but now she's started with coughing and sore throat.  As well, she was running a fever when we put her to bed tonight.

Saturday, 2 October (8Mths)

  • Stephanie had a rough night last night.  She was coughing and wheezing so much last night that she was having trouble breathing.  We talked to Kingston and because she is neither on chemotherapy nor neutropenic, the idea is to treat Stephanie as a normal child - tylenol, rest and time.
  • The worst of it is that Michael sort of got short changed again.  We had worked out that Michael could invite a friend over and I would go to Canada's Wonderland in Toronto with them this morning.  He had it all worked out that we would leave home this morning at 7:30, pick up his friend, and then be in Toronto for 10:00, just in time for when Wonderland opens.  However, with this morning's action, we had to delay our departure till 9:30 so I could be sure we didn't have to go to Kingston with Stephanie.   Even though we didn't make it into Wonderland till about 11:30, he and his friend had a great time.  It was raining a little bit, so we got wet and cold, BUT there were almost no line-ups!  We were able to ride as many roller coasters as we wanted to!  Hmmm, I must be getting older, now I'm getting motion sickness even on roller coasters (I used to only get sick on those rides that go round and round)!

Monday, 4 October (8 Mths: WBC-8.0, HGB-104, Plt-238, Poly-5.3)

  • Stephanie has been having a lot of trouble breathing over the last two nights.  She seems OK during the day, but in the middle of the night she wakes up coughing and then ends up irrating her throat so much that she can barely breath.  Just to be safe, we went in to Kingston this morning to see her doctor. 
  • Her counts were as expected.  Basically, the best thing to do at this time is to wait a few more days to see if she can get through it on her own.  Assuming that her coughs clear up over the next few days, they only want to see her in a month (instead of the two weeks)!   Her counts have been fairly stable over the past few months and they can relax the blood count checks a little.  Its very encouraging and we remain cautiously optimistically that the worse is behind us.

Wednesday, 20 October (9 Mths)

  • Stephanie has pretty well gotten over her cold or whatever it was.  Over the past two weeks, we've all taken our turns getting the same thing.  Linda got it the worse; she lost her voice for a few days.  We're all better now.
  • Stephanie has been feeling and looking very good.  She doesn't miss the "not" going to clinic every two weeks at all!

Mths are the number of months since her Bone Marrow Transplant (7 Jan 99).
WBC is the White Blood Cell Count (fights diseases).  Below 1.5 means that her immune system is very weak or non-existant.   (Normal= 4.5-13.5)
HGB is HemoGloBin or red blood cell count (carries nutrients).  Below 70 means a blood transfusion.  (Normal= 120-160)
Plt is the number of Platelets (stops bleeding). Below 20 means a platelet transfusion.  (Normal= 150-450)